Catch up on the 2026 FAP Awareness Week!

Thanks to our Communication Committee members for their valuable contribution to the 2026 FAP Awareness Week. If you missed any of our content we shared during FAP Awareness Week, which took place from June 14-20, you can find all of the resources below in one place.

A timely reminder: valuable FAP-focused research grant opportunities are currently available.

1. CGA-IGC is proud to partner with the Roxanne and Henry Brandt Foundation to offer up to two 2-year research awards focused on improving the lives of patients with Familial Adenomatous Polyposis (FAP). Funding is available for clinical, translational, or basic science research, as well as quality improvement and patient engagement projects. Apply by Friday, July 10, 2026. More information HERE.

1. The Roxanne and Henry Brandt Foundation is also offering additional FAP research grants, including the FAP Investigator Award and FAP Pilot Award, supporting basic science, translational, clinical, health services, and epidemiological research.

    Letter of Intent deadline: Wednesday, July 15, 2026. Application deadline: Saturday, August 15, 2026. Learn more HERE.

June 14: marked the start of Familial Adenomatous Polyposis (FAP) Awareness Week!

To mark the occasion, Megan Dwyer, MS, CGC, CGA-IGC Communications Committee member, spoke with Michael Caprio, author and patient advocate, about his personal FAP journey. 

https://www.youtube.com/watch?v=z8Dy_Pt0GJs

Watch or listen to their full discussion.

This is a valuable discussion for genetic counselors, nurse practitioners, physician assistants, gastroenterologists, surgeons, oncologists, social workers, and other multidisciplinary health care team members.

June 16: We shared an insightful blog post by Jennifer Fijor, ARNP, our Communications Committee member, highlighting new advances in potential chemoprevention for FAP.

Don’t miss these exciting advances in potential chemoprevention, which are giving new hope for more options in the future.  Read more HERE.

• Watch CGA-IGC’s joint webinar with the American College of Gastroenterology, “Chemoprevention in Hereditary Cancer Syndromes: FAP and Lynch Syndrome,” featuring Pooja Dharwadkar, MD, and Katharina Germansky, MD.

In this session, Dr. Dharwadkar provides an overview of FAP, including current approaches to management and surveillance, as well as the role, evidence, and emerging trends in chemoprevention. Read the accompanying webinar blog post HERE.

June 17: Patients diagnosed in childhood or adolescence may not remember earlier discussions or may not have been ready for them. These conversations should be revisited when they become relevant, with clear, accessible information about available options. Re-referral to a genetic counselor can be an important step in ensuring patients and families receive clear, accessible, and up-to-date information about available reproductive options. Here are several resources that may support clinicians caring for FAP patients as they navigate family planning and reproductive decision-making:

• Article: Although older, this article may also be of interest, which addresses attitudes toward genetic testing in childhood and reproductive decision-making 

• Article: Regarding reproductive decision-making, this article outlines the types of information patients considering preimplantation genetic testing may need: Read it HERE.

• Article: ACOG also has a Committee Opinion on this topic HERE.

June 19: One takeaway from the interview notes is that discussions about surgery should address both the medical and psychosocial impacts. Colectomy conversations should go beyond surgery to address daily life, diet, school or work, independence, relationships, mental health, body image, ostomies, nutrition, and fitness.

These resources offer practical guidance for the multidisciplinary hereditary GI cancer team caring for patients with FAP, covering topics ranging from surgery and psychosocial support to guideline comparisons and transition care.

• Webinar: "Life after prophylactic surgery for familial adenomatous polyposis (FAP)." Available on demand for CGA-IGC members. Dr. Paul Wise reviewed surgical options, including IPAA, and the key factors that guide decision-making, while Dr. Karen Hurley highlighted the importance of psychotherapy and psychosocial support after colectomy. Read the accompanying webinar blog post HERE.

• Guideline comparison: This helpful resource compares FAP guidelines "Guidelines for Familial Adenomatous Polyposis (FAP): Challenges in Defining Clinical Management for a Rare Disease," side by side, showing where recommendations align and where they differ. Learn more HERE. 

• Podcast: "Transitioning from Pediatric to Adult Care for Patients with FAP" featuring Kristin Zajo, genetic counselor at Nationwide Children’s Hospital in Columbus, Ohio. This episode focuses on children and young adults with FAP, including key management considerations and the transition to adult care. Listen HERE.

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Our webinars are a valuable member benefit, and we encourage you to sign up as a member so you can join the live webinars and access our earlier webinar series on demand!

You might also like to explore our podcasts. The CGA-IGC Research Collaboration series or others from the CGA-IGC Podcast Series (Seasons 3, 4, 5, 6 & 7) presented by the CGA-IGC Education Committee. Or, explore our Expert Approach to Hereditary Gastrointestinal Cancers podcast series (Seasons 1 and 2).

We're also on Spotify!

Also, looking for other educational resources? Toolkits? Journal scans?

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