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Learn more about Life after prophylactic surgery for familial adenomatous polyposis (FAP)

Updated: Apr 15

If you didn’t have the chance to join us for our fourth webinar of the year (or are interested in viewing it again!), as a CGA-IGC member, you can now watch the recording. Not a member yet? Join here

Our fourth webinar of the 2023 series was presented by Paul E. Wise, M.D., and Karen Hurley, PhD, and focused on the patient surgical experience in FAP.

Dr. Wise walked us through the operative options for patients with FAP, carefully reviewing the pros and cons related to each procedure. He discussed outcomes related to each option, as well as remaining risks and functional issues to consider. While ileal pouch-anal anastomosis (IPAA) is now considered to be the standard of care for FAP patients, surgical decisions are typically guided by careful consideration of the following: # rectal polyps, genotype, presence of colon/rectal cancer, functional status, compliance, familial experiences, and desmoids.

Dr. Hurley then shifted gears by focusing on psychotherapy in FAP, an important part of the multidisciplinary care of patients. She explored the psychosocial challenges faced by FAP patients after total colectomy that affect emotional well-being and quality of life (QOL). Although most QOL studies reflect scores that indicate patients with FAP are doing well and exceeding expectations, we were reminded of the need for careful data interpretation. Given the diverse spectrum of patient experiences and personal objectives, self-reported outcomes can vary significantly.

Many thanks to our fantastic speakers and moderators for their time!

We hope you enjoyed this webinar and the productive discussion. Please stay tuned for the next CGA-IGC webinar!

___________________________________________________________________________ Our webinars are a valuable member benefit, and we encourage you to sign up as a member so you can join the live webinars and access our earlier webinar series on demand! Also, looking for other educational resources? If you enjoy webinars, you may like our Journal Club podcast series (Seasons 3, 4 &5) presented by the CGA-IGC Education Committee. Or explore our Expert Approach to Hereditary Gastrointestinal Cancers podcast series (Seasons 1 and 2). We're also on Spotify! ___________________________________________________________________________________

For this year’s CGA-IGC annual meeting fundraiser, we’re going Las Vegas-style!

Friday, October 27, 2023, will be someone’s Beautiful Day thanks to a CGA-IGC member who has generously donated two U2 tickets worth $700. One lucky winner and their guest will see the mega band U2 live at the Sphere in Las Vegas at 8 pm Pacific time.

Entry into the prize draw costs:

  • $30 for 1 entry

  • $50 for 2 entries

  • $100 for 5 entries

For more info and to enter the draw - click here

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