If you missed the live webinar, you can now watch the recording of this engaging webinar.
The GCA-IGC Research Committee are the organizers of the "Tips and Tricks for development of a clinical registry” webinar, which explores the development and sustainability of a Hereditary Gastrointestinal Cancer Registry.
Our three speakers, both US-based and international, cover topics including identification of patients who meet inclusion criteria for registry enrollment, essential data points to collect for each patient, how to interact with the existing EMR and overall challenges and suggestions for maintaining a registry.
Anyone who is currently managing or considering developing a registry could benefit from this webinar recording, including early-career attendees. We hope you enjoy join this exciting talk!
This is the first resource in our Setting up a Hereditary Gastrointestinal Cancer Registry toolkit and additional content will be added here moving forward.
Many thanks to our wonderful moderator and speakers for their time and sharing their knowledge around this important topic.