Member Highlight: Dave Dubin's mission to support and educate those with Lynch Syndrome
Many of you know Dave as an advocate in the hereditary GI cancer space. Dave is a 3-time Lynch syndrome cancer survivor and co-founder of AliveAndKickn, a highly-informative and wonderful website and resource. Dave’s mission in co-founding AliveAndKickn is to support and educate individuals as they navigate the intricacies of living with Lynch syndrome and other hereditary cancer syndromes. In addition to all of the work that Dave does through AliveAndKickn, we are thrilled to have him recently join the CGA-IGC Communications & Membership Committee.
AliveAndKickn Updates for 2021-2022
2021 saw some incredible advances in the work we do for the Lynch syndrome community including:
The relaunch of the HEROIC Registry on the new LunaDNA platform
The 2021 in-person Living with Lynch Patient Workshop
Over 50 new episodes on AliveAndKickn the Podcast
Lynch Syndrome Patient Community Discussions: March-August, 2022
Each community discussion session will feature a Living with Lynch patient video followed by live discussions around each topic. Scheduled from March through August 2022, we will engage a moderator to facilitate conversation with patients, medical professionals and other experts, patient advocates, and online attendees. The Virtual Community Discussions will feature six (6) online sessions in 2022. More info and registration here.
2022 Living with Lynch Participant Application
Applications are now open for the 2022 Living with Lynch Patient Workshop taking place September 15-18th, 2022 in Boston, MA which will feature presentations and Q&A by leading Lynch syndrome providers and researchers from Mass General Cancer Center. Approximately a dozen patients will be invited to participate in person. Applications are available to anyone that may be interested in participating in-person. Lynch syndrome patients can apply here.
We hope you have had a chance to check out the LivingWithLynch.org resource. The microsite features videos and photos of patients sharing how their Lynch syndrome diagnosis impacts them, their family, and their outlook on the future. AliveAndKickn and the Colon Cancer Coalition hope to help patients Living with Lynch make informed decisions about health and provide a community to relate to as they navigate future health needs.