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CGA-IGC highlights #HereditaryGICancer during Hereditary Cancer Awareness Week!

Updated: Oct 5, 2023




Thank you to #CGAIGC committee members, leaders & the wider #HereditaryGICancer community for contributing to the 2023 #HereditaryCancerWeek


The mission of CGA-IGC is to be a resource to its members and the wider #HereditaryGICommunity, and we're delighted to highlight the resources and initiatives shared during #HereditaryCancerWeek


In case you missed it!

September 24 / Partnered with Fight CRC to kick off and honor Hereditary Cancer Awareness Week.

September 25 / Updates to NCCN testing criteria for Lynch syndrome and a short video message from Heather Hampel regarding the importance of expanding testing criteria.

September 26 / An update on Lynch syndrome vaccine clinical trials and a video interview with Drs Zach Foda and Ajay Bansal.

September 27 /Screening for pancreatic cancer: advances in screening and an overview of current guidelines. If you missed our blog post, you can read it here. It was #NationalPrevivorDay! We highlighted two previvor stories from Fight CRC. Read Courtney's and Michael's story.

September 28 / Inherited pancreatic cancer predisposition part I - CDKN2A. Read our blog post here.

Also, there was a joint webinar with the American College of Gastroenterology (ACG) featuring Bryson Katona and Beth Dudley Yurkovich, who discussed the identification and genetic testing of individuals at increased pancreatic cancer risk and outlined recent advances in pancreatic cancer surveillance in high-risk individuals. Listen to their pre-webinar message here! If you missed this webinar, you can read our blog post here

September 29 / Inherited pancreatic cancer predisposition part II - ATM. Another insightful blog post here.

September 30 / Focused on Hereditary gastric cancer - CDH1 and CTNNA1. Learn more here.


We would also like to give a shout-out to the following organizations and individuals that hosted events for patients and providers and honored and recognized Hereditary Cancer Awareness Week:

  • Alive and Kick’n created a social media toolkit for patients and health professionals to raise awareness during Hereditary Cancer Week, and on Wednesday, September 27, 2023, they shared a special Previvor Day video.

  • The University of Colorado hosted the 5th Annual Dennis J. Ahnen Lectureship on Thursday, September 28th, 2023, featuring Dr. Patrick Lynch, Esq. Dr. Lynch discussed approaches to endoscopy in polyposis syndromes, and the talk was live streamed via Zoom.

  • The University of Colorado Cancer Center hosted a Lynch Syndrome Best Practices Symposium on Saturday, September 30, 2023, that featured keynote speaker Dr. Patrick Lynch. This in-person event aimed to bring their Lynch syndrome community together and included panel discussions and presentations on a wide range of topics.

  • Kathy Baker, founder of My Faulty Gene, hosted her second annual Previvor Dinner on Wednesday, September 27, in East Texas. My Faulty Gene, an organization dedicated to providing access to germline genetic testing and genetic counseling for underserved, uninsured & underinsured patients, will also be an exhibitor at the upcoming CGA-IGC annual meeting in Las Vegas.

  • Mark Hicks, professional illustrator, parent of a previvor, and advocate, shared his artwork and stories to help raise awareness during Hereditary Cancer Awareness Week. Check out his website for the incredible resources he has created to help patients understand hereditary cancer.

The CGA-IGC research and education committee jointly published “Cancer Surveillance for transgender and gender diverse patients with Lynch Syndrome: A Practice Resource of the Collaborative Group of the Americas on Inherited Gastrointestinal Cancer.” Browse the resource here.


This work was highlighted at two conferences during #HereditaryCancerWeek:

  1. The international hereditary tumor conference European Hereditary Tumour Group (EHTG) on Friday, September 29th, in Vilnius, Lithuania.

  2. A regional genetic counselor conference Northern California Coalition of Genetic Counselors’ annual conference on Friday, September 29th.

CGA-IGC continues to provide clinicians with best-practice care guidelines for transgender and gender-diverse patients with hereditary gastrointestinal cancer. For more resources and information, see our CGA-IGC LGBTQI toolkit.


Looking towards #ColorectalCancerAwarenessMonth 2024! Be sure to Save the Date for Dana Farber Cancer Institute’s 2024 LYNKED IN Annual Conference!

When: Saturday, March 23, 2024

Where: Hotel Commonwealth in Boston, MA

What: A day of education and community for patients and families with Lynch

Syndrome


For more information, follow the Lynch Syndrome Center on Facebook or reach out here.


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Interested in educational content? Our webinars are a valuable member benefit, and we encourage you to sign up as a member so you can join the live webinars and access our earlier webinar series on demand!


Also, are you looking for other educational resources? If you enjoy webinars, you may like our Journal Club podcast series (Seasons 3, 4 &5) presented by the CGA-IGC Education Committee. Or explore our Expert Approach to Hereditary Gastrointestinal Cancers podcast series (Seasons 1 and 2). We're also on Spotify! ___________________________________________________________________________________





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