Find a Registry

 

CGA is pleased to offer members access to a vast list of global registries.
The list below provides you with quick access to Registries throughout the US, Canada and South America.

Need assistance in contacting a registry?

For information on starting a registry, please contact CGA at

cga@pacemedcom.com

If you are interested in more information on starting a hereditary colorectal cancer registry, a manual is available online to members.

(password required)

Argentina

Caba

1. CABA

Programa de Cancer Hereditario (ProCanHe)

Email: carlos.vaccaro@hospitalitaliano.org.ar

 

Cordoba

2. Cordoba

Programa de oncogenetica. Hospital Privado Universitario de Cordoba. Argentina.
(Programa de oncogenetica. Hosp. Priv. Univ. de Cba.)

Email: oncogeneticahp@gmail.com

 

Sante Fe

3. Rosario Santa Fe

Florencia Spirandelli (FS)

Email: Spirandelliflorencia@gmail.com

 

Brazil

Sao Paulo

4. Sao Paulo

Beneficência Portuguesa de São Paulo (BP)

Email: erika.santos@bp.org.br

 

Canada

Ontario

5. Toronto

Ontario Pancreas Cancer Study (OPCS)

Email: Ayelet.Borgida@sinaihealthsystem.ca

 

6. Toronto, ON

Familial GI Cancer Registry (FGICR)

Email: melyssa.aronson@sinaihealthsystem.ca

 

7. Toronto, Ontario

Ontario Familial Colorectal Cancer Registry (see CCFR) (OFCCR)

Email: OFCCR@lunenfeld.ca

 

Chile

Santiago

8. Santiago

Hereditary Colon Cancer Registry-Clinica Las Condes (HCCR-CLC)

Email: kalvarez@clc.cl

 

International

9. International

IMRC

Email: m.jenkins@unimelb.edu.au; daniel.buchanan@unimelb.edu.aufmunro@unimelb.edu.au

 

10. International

Colon Cancer Family Registry (includes OFCCR, University of Hawaii, Cedar-Sinai,
Mayo Clinic, Fred Hutchinson Cancer Centre - Seattle) (CCFR)

Email: atemplet@fredhutch.org

 

USA

Arizona

11. Scottsdale, Arizona

Mayo Clinic (see CCFR) (see CCFR)

Email: atemplet@fredhutch.org

 

California

12. Los Angeles, CA

Cedars-Sinai Medical Center (See CCFR) (See CCFR)

Email: atemplet@fredhutch.org

 

Connecticut

13. New Haven, CT

Yale High Risk Pancreas Registry

 

Hawaii

14. Honolulu, HI

Hawaii Colon Cancer Family Registry Cohort (see CCFR) (Hawaii CFR (see CCFR))

Email: hhchang@cc.hawaii.eduterrilea@cc.hawaii.edu

 

Illinois

15. Chicago Illinois

Sandra Rosenberg Registry for Hereditary and Familial Colon Cancer

Email: joshua_melson@rush.edu

 

16. Chicago, IL

University of Chicago Gastrointestinal Cancer Risk and Prevention Registry
(University of Chicago GI Cancer Risk Database)

Email: skupfer@medicine.bsd.uchicago.edu

 

Massachusetts

17. Boston, MA

i. Families Affected by Colon and Endometrial Cancer Study ii. Pancreatic Cancer Genes Study
(i. FACES II. PAGES)

Email: FACES@dfci.harvard.edu

 

Michigan

18. Ann Arbor, MI

University of Michigan Cancer Genetics Registry (Cancer Genetics Registry)

Email: CancerGenetics@med.umich.edu

 

Missouri

19. St. Louis, MO

Washington University Inherited Colorectal Cancer and Familial Polyposis Registry
(Washington University ICCFP Registry)

Email: wisepe@wustl.edu

New York

20. New York

Hereditary Colorectal Cancer Family Registry

Email: registryprotocol01-110@mskcc.org

21. New York, NY

Pancreas Disease and High Risk Registry

Email: anne.aronson@mssm.edu

22. New York

Clinical Hereditary GI Cancers Registry

Email: CADC-Genetics@NYP.org

Ohio

23. Cleveland, Ohio

David G Jagelman Inherited Colorectal Cancer Registry (Jagelman Registries)

Email: laguarl@ccf.org

 

24. Cleveland, Ohio

Sanford R. Weiss Center for Hereditary Colorectal Neoplasia (Weiss Center)

 

25. Columbus, OH

The Ohio State University Population-Based Colorectal Cancer Cohorts (OSU CRC Cohorts)

Email: Heather.Hampel@osumc.edu

Omaha

26. Nebraska, Omaha

Nebraska Creighton University Omaha, Nebraska

Email: HollyStessman@creighton.edu

 

Oregon

27. Portland, OR

Oregon Pancreas Tissue Registry (OPTR)

Email: OPTR@ohsu.edu

 

Pennsylvania

28. Philadelphia, PA

Gastrointestinal Cancer and Polyposis Registry

 

29. Pittsburgh

Hereditary Colorectal and Associated Tumor Study

 

30. Pittsburgh, PA

The Pancreatic Adenocarcinoma Gene Environment Risk Study (PAGER)

 

Tennessee

31. Nashville, TN

Inherited CAncer REgistry (ICARE)

Email: ICARE@inheritedcancer.net

 

Texas

32. Houston, TX

MD Anderson Familial High Risk Gastrointestinal Cancer Clinic (FHRGIC)

Email: ynyou@mdanderson.org

 

Utah

33. Salt Lake City, UT

Hereditary Gastrointestinal Cancer Registry (HGCR)

Email: registry.coordinator@hci.utah.edu

 

Vermont

34. Burlington, Vermont

Familial Cancer Program of the University of Vermont Cancer Center (FCP)

Email: wendy.mckinnon@uvmhealth.org

 

Patient-lead

35. Haworth

The HEROIC Registry from AliveAndKickn

Email: robin@aliveandkickn.org